If you have recently learned that your child has an Autistic Spectrum Disorder (ASD), this
guide is for you. It has been developed with the help of parents of children with autism, to:
• help you understand what autism is
• give you a picture of what you and others can do to help your child
• tell you about the support that is available
• answer the questions that many parents have at this time
NHS Choices – Caring for children with complex needs
If your child has been diagnosed with an illness, disability or sensory impairment that needs a lot of additional support for them to live day to day, they might be described as having “complex needs”. A child might have complex needs from birth, or following an illness or injury.
Carers Information Service
Provides free and confidential information, advice and support to anyone looking after a relative, friend or neighbour who could not manage without their support due to illness, frailty, disability, mental health concern or addiction. We produce and distribute information for carers including factsheets and a quarterly newsletter and organise regular events throughout the year. Our team of carers outreach workers can work with carers 1:1 offering support to help them better manage the impact of their caring role. The service is available throughout Carmarthenshire and is hosted by Crossroads Sir Gar, a network member of Carers Trust.
Tel: 0300 0200 002
Special Friends is for people with learning/intellectual disabilities and their parents/carers. Helping people keep in touch and share information, especially for those who have babies and infants with a learning disability to meet people having similar experiences and perhaps being united with support groups and people in their own area.
Early Support Wales
Early Support Wales is the Welsh Assembly funded programme to improve the delivery of services to disabled children under five.
AFASIC Cymru supports parents of children with speech, language and communication impairments.
Deaf Parenting UK
Deaf Parenting UK is a resource of information for deaf parents and professionals working with deaf parents.
Down Syndrome Association
Down Syndrome Association is the only organisation focusing solely on all aspects of living successfully with Down’s Syndrome.
Epilepsy Action aims to improve the lives of those affected by epilepsy.
National Deaf Children Association
National Deaf Children Association works to support families in Wales with deaf children.
“The AWF is unique among Learning Disabilities bodies in Wales in that it is the only organisation that represents nationally, collectively and solely the views of Parents and Carers of people with learning disabilities. We are an umbrella body for locally and regionally based organisations and support groups made up of parents and carers. Our wider alliance partners share a commitment in working to improve the rights and recognition of parents and carers and families supporting loved ones living with learning disability. The Forum is also governed by parents and carers, ensuring that our client base has a clear input into the strategic direction and core work of the organisation.”
Click on the link to go to their website http://www.allwalesforum.org.uk/